The Study of Dementia in Swedish Twins

protocols

These protocols were developed by Prof. Margaret Gatz and Prof. Nancy Pedersen for the Study of Dementia in Swedish Twins, supported by NIA Grant No. AG08724. If you wish to use any of these instruments, in Swedish or in English, please contact Margaret Gatz, Ph.D., Department of Psychology, University of Southern California, Los Angeles CA 90089-1061, e-mail gatz@rcf.usc.edu, Tel 213 740 2212, Fax 213 746 5994.NOTES:The INFORMANT INTERVIEW incorporates the Clinical Dementia Rating (CDR), described in Morris, J.C., et al. (1997). Clinical Dementia Rating training and reliability in multicenter studies: The Alzheimer’s Disease Cooperative Study experience, Neurology, 48, 1508-1510. Contact Dr. John C. Morris, Department of Neurology, Memory and Aging Project, Washington University School of Medicine, 4488 Forest Park Boulevard, St. Louis, MO 63108-2293, with respect to the Clinical Dementia Rating and Brief Training and Reliability Protocol, including worksheets and training tapes.The NPI and NPI-NH are copyrighted to Jeffrey L. Cummings (1994). Actual items may not be reproduced in any publication. The instrument is free to investigators; however, any commerical use must be approved by Dr. Cummings. The version of the NPI used in the Study of Dementia in Swedish Twins does not include caregiver distress ratings. An introduction to the NPI, a training videotape, the English language NPI, and translations of the NPI into a variety of languages are available from Dr. Jeffrey L. Cummings, Department of Neurology, UCLA School of Medicine, 710 Westwood Plaza, Los Angeles CA 90095-1769.

The prospective memory test which is part of the COGNITVE BATTERY was developed by Felicia Huppert and used in the Medical Research Council multi-centre Cognitive Function and Ageing Study (MRC CFAS). For further information contact: Dr. Felicia A. Huppert, Department of Psychiatry, University of Cambridge, Box 189, Addenbrooke's Hospital, Cambridge CB2 2QQ, UK. Tel: (44 1223) or 01223 336970. Fax: (44 1223) or 01223 336968, e-mail: fah2@cam.ac.uk

The Memory in Reality (MIR) or "apartment test" which is included on the COGNITIVE BATTERY was developed by Boo Johansson to provide an ecological context for memory testing in the elderly. The test has been used in several population-based and clinical studies of the oldest-old. For information contact: Dr. Boo Johansson, Institute of gerontology, University of Health College, Box 1038, SE-551 11 Jönköping, Sweden. Email: boo.johansson@hhj.hj.se

The CIDI-SF screening for major depressive disorder, included in the COGNITIVE BATTERY, is public and can be used by anyone free of charge. The instrument is posted on the WHO CIDI home page at the URL: http://www.who.ch/msa/cidi.   The publication describing the scale is: Kessler, R.C., Andrews, G., Mroczek, D., Ustun, B. & Wittchen, U.-L. (1998). The World Health Organization Composite International Diagnostic Interview Short Form (CIDI-SF). International Journal of Methods in Psychiatric Research, 7, 171-185.

The Cumulative Illness Rating Scale is from: Parmelee PA, Thuras PD, Katz IR, & Lawton MP (1995). Validation of the Cumulative Illness Rating Scale in a geriatric residential population. Journal of the American Geriatrics Society 43(2), 130-137.